Thrombotic Storm

WHAT IS IT?

While most people who develop a blood clot in their vein have a deep vein thrombosis (DVT) or a blood clot in their lung (pulmonary embolism), a very small number of people who develop blood clots have a more serious and often life-threatening syndrome called Thrombotic Storm.

People with Thrombotic Storm experience more than one blood clot in a short period of time. These clots occur in different and sometimes unusual locations in the body. This very aggressive and serious form of blood clotting is often difficult to treat, and there is very little research or documentation of this disorder.

Although research on Thrombotic Storm is still in nascent stages, scientists believe the disorder may be associated with an existing condition that predisposes a person to blood clots – like cancer, infections, or pregnancy. It has also been seen in patients with Antiphospholipid Syndrome (APS), a disorder that causes blood clots as well as pregnancy complications including miscarriages and preeclampsia. When Thrombotic Storm is seen in patients with APS, the condition is referred to as ‘catastrophic Antiphospholipid Syndrome’, or catastrophic APS (CAPS).

To learn more about Thrombotic Storm check out these links:

https://www.stoptheclot.org/news/thrombotic-storm-a-rare-but-serious-unknown-blood-clot-disorder/

http://hihg.med.miami.edu/thromboticstorm/

http://apsfa.org/

https://globalgenes.org/